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CHMP positive opinion for Kaftrio/Kalydeco in CF children 2-5 y.o.European Medicines Agency’s (EMA) Committee for Medicinal Products for Human Use (CHMP) adopted... -
Concert for Cystic Fibrosis “Breath Unlimited- Be a life donor”HCFA organises a live music event of free entry with the music band...
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8th of September, Worldwide Cystic Fibrosis Day “Breath Unlimited – Be a life donor”"Unlimited Breath" is the claim of Cystic Fibrosis patients on this year's World...
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Happy summer with Unlimited BreathThe Ηellenic Cystic Fibrosis Association wishes you a happy summer holiday full of...
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Rare Barometer- Eurordis: survey on newborn screening for rare diseases until the 23rd of JulyUntil Sunday 23 July, the Rare Barometer survey of the European Rare Diseases...
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July’s Online Coffee Break – Wednesday 19/7 at 20.00 pmDear members, We are pleased to welcome you to our last summer online...
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Coordination of the President of our Association at the conference “Health financing: Challenges and solutions for a sustainable system”Moderator of the second session of the workshop "Health financing: Challenges and Solutions...
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Positive are the results of the 2nd cycle of psychological support groupsThe results of the second cycle of the programme of psychological support groups...
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The President of our Association at the 1st Board of EURORDIS- Rare Diseases EuropeThe President of the Hellenic Cystic Fibrosis Association, Anna Spinou, participated in the...
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Meeting with doctors of the Cystic Fibrosis Clinic of Larissa General HospitalThe representatives of our Association, Anna Spinou (President), Konstantina Giannaki (General Secretary), Maro...
