- Looking for information on Cystic Fibrosis, neonatal screening, lung transplantation?
- Do you need support to deal with CF?
- Do you have questions about your benefits and rights as a CF patient or caregiver?
- Do you need to talk about the issues you face as a lung transplanted CF patient?
The team of the Cystic Fibrosis Support Line “Unlimited Breath” is at your side to advise you, to guide you
and answer every question you have about the most common inherited disease.
Contact us for free every Tuesday: 11.00-15.00 (EEST) and Wednesday, Thursday: 15.00-19.00 (EEST).
What is the CF Helpline "Unlimited Breath"?
This is the first national helpline for Cystic Fibrosis in Greece, which provides psychosocial support and information about the disease. An initiative of the Hellenic Cystic Fibrosis Association, aiming to empower everyone who is affected by Cystic Fibrosis or anyone who needs information about the most common hereditary disease and organ donation.
Can I contact the Helpline?
The Cystic Fibrosis Helpline “Unlimited Breath” is here for anyone who needs psychosocial support regarding any aspect of life with Cystic Fibrosis or anyone seeking information and accurate information about the disease.
The CF Helpline can contact:
- Patients with Cystic Fibrosis
- Transplanted patients with CF
- Parents and caregivers of patients with CF
- Family, partners, friends, relatives of patients with CF
- Carriers of the disease
- Teachers, employers, health professionals and other professionals
- Anyone affected by the disease
- Anyone who has questions or wants to know more about Cystic Fibrosis and lung transplantation
Who will answer the Helpline?
The Helpline is answered by a psychologist and a social worker, treating every conversation with respect and confidentiality. Every conversation is protected by confidentiality. See here the biographies of the Helpline team.
What kind of help can I get?
- We provide information on Cystic Fibrosis, prevention, neonatal screening, organ donation, etc.
- We answer any questions about the disease.
- We share with you the psychological burden of living with Cystic Fibrosis and we suggest you solutions to improve your life with the disease.
- We answer questions about health benefits, allowances, socio-economic benefits, education, employment, pension, etc., concerning patients with CF and their families.
- We connect you with support networks..
- We inform and guide the community about activities and patient support programs of the Hellenic Cystic Fibrosis Association.
The CF Helpline does not provide medical advices or services. For medical advice, such as diagnosis, medication, treatments, etc., please contact the CF Centers.
Connect with Greek CF community
Are you a Cystic Fibrosis patient or caregiver and you want to chat with members of the Association, patients and families with CF, from all over Greece in a safe online space? Connect with the Cystic Fibrosis online community of the Hellenic Cystic Fibrosis Association.
- Join the Association’s private Facebook group “HCFA || Members Contact Group” by filling in your details here.
- Participate in the monthly zoom online coffee break support meetings, announced monthly on the Association’s website.
In the online CF community you can participate and follow private discussions, concerning CF, without being publicly exposed to third parties. You can share your private thoughts and sensitive information with other community members about your daily life with CF, your experiences, best practices, treatments, social benefits, etc.
In the CF community no one is alone!
The CF Helpline "Unlimited Breath" could not have become a reality without the support of the employees of Teva Pharmaceuticals and the Humanizing Health Awards 2023, which awarded the Hellenic Cystic Fibrosis Association and embraced our idea.