Activities of the Hellenic Cystic Fibrosis Association

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Activities of the Hellenic Cystic Fibrosis Association mkrokos April 21, 2024

The Hellenic Cystic Fibrosis Association advocates for CF patients’ rights and access on care, treatment and social welfare, representing the CF patients and their families on a nationwide level. HCFA supports the development of CF centers in Greece, where patients with Cystic Fibrosis are monitored. It advocates for patients’ access to available medicines, treatments and lung transplants, while raising public awareness of the disease, prevention and organ donation. It organises conferences, workshops, meetings, etc. psychosocial support programme and others support programmes for theempowerment of patients and their families, as well as information for the public and health professionals. It organizes campaigns, awareness events, video spots, etc to inform the general public about Cystic Fibrosis and the need for prevention and early diagnosis of the disease. It supports CF patients’ registries at national and European level. It promotes any kind of research project on Cystic Fibrosis to find a cure or prevent the disease. It collaborates with stakeholders, national and international authorities, associations, etc to advocate better for Greek CF patients.

In this section you will find information about the most important activities of the Association.