Children’s book “Secret Mission: CF”

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Children’s book “Secret Mission: CF” HCFA TEAM November 26, 2023

"Secret Mission: CF", the first interactive children's book
on Cystic Fibrosis in Greece

An initiative of the Hellenic Cystic Fibrosis Association for young and old patients, their parents and caregivers, the doctors who are at their side, but also for every person who wants to unlock the secrets of the most common hereditary disease and discover how we can cope with every difficulty in our lives.

"This is not a normal book, it's a journey. A secret mission that aims to show kids that if they follow their schedule, nothing can put a brake on their limitless potential. Because C.I., like any difficulty, cannot and should not limit anyone's life!"

The book was created in the context of the European Cystic Fibrosis Week 2023 on the occasion of the 40th anniversary of the founding of the Hellenic Cystic Fibrosis Association. The writing and illustration was undertaken by the renowned author of children’s books, Liana Denezaki, in collaboration with the Cystic Fibrosis Scientific Committee and the Board of Directors of the Association. The book was kindly supported by Vertex Pharmaceuticals and presented for the first time at the conference “Cystic Fibrosis: Looking to the Future”, on 3/12/2023, at Innovathens Technopolis, Municipality of Athens. The book and the accompanying pouch with the secret agent’s tools are distributed free of charge from the Hellenic Cystic Fibrosis Association and the CF Pediatric Centers.

Message to young and old readers

The “Secret Mission: CF” is a gift from the big “kids” of Cystic Fibrosis and our parents to younger patients, but also to anyone who wants to learn about the most common hereditary disease of Cystic Fibrosis.

A legacy to younger generations, on the occasion of the 40th anniversary of the founding of our Association.

The idea was born when adult patients wondered what we would advise ourselves to do if we went back in time. As a need to unravel the mystery of the disease and unlock its secrets.

For those of you who have completed “Secret Mission: CF”, remember that the journey is not over. On the contrary, it’s starting now!

We hope that this book will be a trigger for the discovery of the limitless possibilities that not only anyone with Cystic Fibrosis has, but also every person who faces any difficulty in their life!

The book and the accompanying pouch with the secret agent’s tools are distributed free of charge by the Hellenic Cystic Fibrosis Association and the C.F. Pediatric Centers and Clinics to patients with Cystic Fibrosis, their caregivers, but also to anyone who wishes to unlock the secrets of the disease. To obtain the book from our Association, please fill in your details in the form below.

Message to the secret agents

Congratulations! To be here means that you have successfully completed all the tests and are now part of the K.I. secret team, i.e. you are officially our agent!

First of all, I will reveal to you where I was inspired by my name. For Chloe’s sake I did a lot of research until I found the one that would suit me best. Kiri! Kiri is a rare, special, beautiful and impressive tree – just like me. However, I didn’t choose it for any of the above reasons, but because its main feature is its amazing oxygen productivity. This tree consumes more carbon dioxide and produces the most oxygen than any other tree on our planet. That is why it has such large leaves. To give you an idea of the power of kiri, it captures 21.7 kilograms of carbon dioxide every day, which it converts into almost 6 kilograms of oxygen. Scientists say that planting many of these trees could be the answer to fighting climate change. I, on the other hand, believe that it symbolizes exactly what Chloe, like our planet, needs most: the Unlimited Breath.

As you may have noticed, on the cover of the book there is a sign showing the lungs and it says: Hellenic Cystic Fibrosis Association. (Can you replace the “K” in “Cystic” with “M”) and read the name of the club?

Well, now that you know, it’s time to find out how this club came about:

The Hellenic Cystic Fibrosis Association was founded 41 years ago, in 1983, by parents of young children with Cystic Fibrosis. Mums and dads all joined together and became one big team to fight for their children to have all the medicines they need to be well. Over the years the children grew up and became members of the club’s large team. Today parents and patients are fighting together hand in hand for a better tomorrow with more Unlimited Breath!

And now it's time to check the correct answers in your book:

Page 6
ΚΥΣΤΙΚΗ ΙΝΩΣΗ (okay, that was easy!)

Page 7

Page 13

Page 15
Do the words “cavities” and “gingivitis” mean anything to you? They are oral diseases caused by plaque germs that form on the teeth when we don’t brush and brush them properly. Now think what would happen if we didn’t wash them AT ALL!
Toothache, bad breath, difficulty chewing food, bad teeth, teeth that need to come out, swelling. There you go, I’ve found not 3 but 6 things, and if I think about it some more, I’ll fill 3 pages, not just 3 lines!

Page 21
In a circle you need to put: meat, yoghurt, chocolate, nuts, toast milk, bread with tahini and honey, bread with jam

Delete: banana, orange juice, carrot, apple, hummus, bean salad, broccoli

Page 23
You already know the answer, but let me emphasize that children with C.F. are not different from other children.

Page 27
You must have spotted 10 grapefruits in the picture.

Page 28
Correct answers
1Γ, 2Β, 3Β, 4Α, 5Β, 6Α, 7Α, 8Α, 9Γ

And now you can fill in your details here, so you can receive our frequent updates and learn about the club’s news. Of course, you can also send us your questions, ideas and share with us your concerns.

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Flip through the book!

You can flip through the book. If you like it, press the button to fill in the form
so we can send it to you with the Secret Agent’s gear!

We thank the author and illustrator of the book, Liana Noezaki, the scientific committee of C.F. and our doctors, the members of the Board of Directors and all the members of our Association for their contribution so that the “Secret Mission: C.F.” could take shape, exactly as we envisioned it. We thank Vertex Pharmaceuticals for their kind support, thanks to which our book became a reality.