Conference Speakers

The conference was attended by more than 40 distinguished speakers from Greece and abroad, representing the scientific community, the State, international organizations and the patient community.

The sections of the conference were moderated by President Spinou Anna, Vice President Giannaki Konstantina, and the Secretary General of the Panhellenic Cystic Fibrosis Association Plala George.

Speakers of the Conference were: Adonis Georgiades, Minister of Health, Karpodini Theano, Director of EOPYY, Kani Hara, Pharmacist, Head of the EOPYY Pharmacy Department, Kakoyannis Andriani, Director of Nursing, Sismanoglio General Hospital, Papatheodoridis Georgios, President of the National Transplantation Organization, Professor of Medicine, Director of the University Gastroenterology Clinic and Director of the Liver Transplantation Unit of the “LIKO” General Hospital, Boletis Ioannis, President of Onassis Cardiosurgery Center, Professor of Pathology-Nephrology, School of Medicine of the University of Athens, Papadimitriou Antonis, President of Onassis Foundation, Loukidis Stylianos, President of the Hellenic Lung Society, Michas Anastasios, Director of “Aghia Sophia” Children’s Hospital, Konstantinidou Anatoli, Anatoli. Administrator of the General Hospital of Thessaloniki “G. Papanikolaou”, Kakogianni Andriani, Director of Nursing Services of the General Hospital of G.G.A. Sismanoglio, Makridaki Despina, President of the Panhellenic Union of Pharmacists of Nursing Institutions – PEFNI & Director of the Pharmacy of Sismanoglio, Lymperidis Petros, President of the Panhellenic Association of Physiotherapists, Tsigas Alexandros, Dietitian, MSc, PhDc Clinical Nutrition, Scientific Associate of Harokopio University, Treasurer of the Panhellenic Association of Dietitians – Nutritionists (P.S.D.D.) & Member of the Clinical Nutrition Working Group, Hilde de Keyser, CEO Cystic Fibrosis Europe, Samouilidis Anastasios, Head of Public Affairs of the Hellenic Patients’ Association, Dountounakis Stavros, Former Director of the Cystic Fibrosis Department, Aghia Sophia Children’s Hospital, Spinou Anna, President of the Panhellenic Cystic Fibrosis Association, Member of the Working Group of the National Cystic Fibrosis Registry, Member of the Board of Directors. European Organization Eurordis- Rare Diseases Europe, Patient Representative ePAG representative ERN Lung, European Patients’ Academy (EUPATI) fellow, Retired Administrative Employee of Attikon General Hospital, Patient with Cystic Fibrosis, Tsanakas Ioannis, Coordinator of the Working Group of the National Cystic Fibrosis Registry, Scientific, Head of the Working Group of the Ministry of Health of the Hospital at Home Programme, Professor Emeritus of Paediatrics – Paediatric Pulmonology A.P.TH., Kanaka-Gantenbein Christina, President of the Institute of Child Health, Professor of Pediatrics-Pediatric Endocrinology, Director of the First Pediatric Clinic and Research Laboratory of the National Research Laboratory of the National Institute of Pediatrics, Endo-ERN Aghia Sophia Children’s Hospital representative, Member of the National Committee for Rare Diseases, Scientific Officer of the Expertise Centre for Rare Endocrine Diseases in Children, Makrytanasis Pericles, Associate Professor of Pediatric Endocrinology, Member of the National Committee for Rare Diseases, Scientific Officer of the Centre of Expertise for Rare Endocrine Diseases in Children. Professor of Medical Genetics, Faculty of Medicine, H.C.P.A, Director of the Medical Genetics Laboratory, Aghia Sophia Children’s Hospital, Angeliki Balasopoulou, Biologist, Laboratory Geneticist, Laboratory of Haemoglobinopathies and Cystic Fibrosis, Unit of Mediterranean Anaemia, Theodora Marianna, Obstetrician- Gynaecologist, Assistant Professor of Obstetrics and Gynaecology at the University of Athens – Alexandra Hospital, Member of the Board of the Hellenic Society of Obstetric and Gynaecological Emergencies (HESGE), Petrochilou Argyri, Paediatrician – Paediatric Pulmonologist, Attending Nurse A’, Cystic Fibrosis Department, Aghia Sophia Children’s Hospital, Georgakopoulou Vasiliki, Pulmonologist – Tuberculologist, Attending Nurse B’, Infectious Diseases Unit, Department of Pathological Physiology, University of Athens, Greece, Laiko Hospital, Head of the Respiratory System Infections Working Group of the Hellenic Respiratory Society (HPS), Mitrou Panagiota, Head of the Department of Therapeutic Protocols and Registries of the Ministry of Health, Lutz Nährlich, Professor of General Pediatrics, Pediatric Allergology, Pediatric Pulmonology & Cystic Fibrosis, Director, University Hospital Gießen and Marburg, Germany, Member of the Executive Committee of the European Cystic Fibrosis Registry ECFSPR, Zographopoulos Dimitris, Data Protection Officer (DPO), Ministry of Health, Davis Maria, Head of Production Operations, EDIKA, Loukou Ioanna, MD, MSc, PhD, Pediatrician-Pediatric Pulmonologist, Coordinating Director of the Cystic Fibrosis Department, Aghia Sophia Children’s Hospital, Athens, Diamantea Filia, Pulmonologist, Director of the NHS, Scientific Head of the Adult Cystic Fibrosis Unit, Sismanoglio General Hospital, Hatziagorou Elpida, Professor of Pediatrics and Pediatric Pediatric Pulmonology A.P.TH, Head of the Cystic Fibrosis Unit of the General Hospital “Hippokratio”, Manika Aikaterini, Associate Professor of Pulmonology and Pneumology of the Aristotle University of Thessaloniki, Center of Cystic Fibrosis for Adults, Pulmonology Clinic of the Aristotle University of Thessaloniki, General Hospital “G. Papanikolaou”, Fotoulaki Maria, Professor of Paediatric Gastroenterology at the Aristotle University of Thessaloniki, Director of Paediatric Gastroenterology, Hepatology and Nutrition, General Hospital “G. Papageorgiou”, Emmanuel Paraskakis, Senior Lecturer, G.G. Papageorgiou, G.G. Papageorgiou. Professor of Pediatrics, University of Crete, Head of the Cystic Fibrosis Clinic for Children, University General Hospital of Heraklion, Crete (PEPAGNI), Perlepe Faye, Pulmonologist, Doctor of the University of Thessaly, Department of Medicine, Pulmonology Clinic of the University of Thessaly, Head of the Cystic Fibrosis Clinic for Adults, University General Hospital of Larissa, Lyberi Maria, Dr., Scientific Editor of Human Gene Therapy, former Vice President of Research – Spirovant Bio, former Professor – University of Pennsylvania, Hadjipanagiotou Ioanna, Nurse of the Adult Cystic Fibrosis Unit, Sismanoglio, Tsakona Anna, Secretary of the Adult Cystic Fibrosis Unit, Papanikolaou General Hospital, Tsagaris Hercules, Professor of Pulmonology – Intensive Care, Director of the Intensive Care Clinic of Attikon General Hospital, Scientific Manager of the Lung Transplantation Center of Onassis Cardiac Surgery Center, Frantzeskaki Francesca, Pulmonologist – Intensivist, Attikon Intensive Care Clinic, Attikon General Hospital, Theodoropoulos Fotis, Attending Lung Specialist, Onassis Cardiosurgery Center, Guttmacher Vassilis, Dr, Clinical Psychologist, Joka Anna, Central Coordinator, Hellenic Transplantation Organization (HTO), Katsini Irini, Senior Consultant in Psychiatry, Asclepion Voula General Hospital, former Vice President of the Panhellenic Cystic Fibrosis Association, Cystic Fibrosis Patient, Rakitzi Stavroula, Dr., Dipl.-Psychologist Clinical psychologist with competence in Cognitive Behavioral Psychotherapy, Volunteer – Head of the group psychotherapy program of the Panhellenic Cystic Fibrosis Association, Pavlidi Irini, Psychologist – Mental Health Counselor, Volunteer – Head of the Cystic Fibrosis Support Line, Liana Nemezaki, Author and illustrator of children’s books, Co-founder of “Yellow Patini” publications, Kumaki Kalliopi, Primary Education Teacher, Cystic Fibrosis patient.

Their stories were shared by patients Tiglianidou Melina, Paliou Maria, Diliou Dimitra(transplant recipient), Antonopoulos Dimitris† (psychotherapeutic message in memory of Rakitzis Stavroula), Gini Despina (candidate for lung transplantation) and patient caregivers Bozini Irini and Giannaki Konstantina.