Who we are

Who we are HCFA TEAM February 15, 2023

The Hellenic Cystic Fibrosis Association under the name “Hellenic Cystic Fibrosis Association” (H.C.F.A.) is a non-profit association of patients. It was founded in 1983 in Athens and represents Cystic Fibrosis patients and their families nationwide.

It is one of the oldest patient associations in Greece. During its 40 years of operation, it has managed to change the “map” of the disease in Greece. Through the collective effort of all its members, it improves the quality of life of patients and ensures their active participation in decisions and actions concerning their health and rights.

The Association is registered in the National Register of Private Sector Non-Profit Organizations providing social care services, as well as in the Special Register of Voluntary Non-Governmental Organizations.

The Association is a founding member of the Hellenic Association of Patients (EAE) and the Hellenic Association of Rare Patients (ESAE) and participates as a member and representative of our country in European organizations.

Board of Directors

Anna Spinou
President
Irene Katsini
Vice President
Constantina Giannaki
Secretary General
Nadia Proga
Treasurer
Maria Paliou
Deputy Secretary
Christos Bakodimos
Dep. Treasurer
Roula Johnou
Member of the Board of Directors

Our Partners

Stavroula Rakitzi
Psychologist- Psychotherapy groups
Dionysis Chionis
Legal Advisor
Eleni Atsave
Psychologist- CF Helpine

Scientific Committee

The Panhellenic Cystic Fibrosis Association is supported by a Scientific Committee, which consists of scientists specialized in Cystic Fibrosis from all hospitals in Greece, where patients are monitored and treated.

The mission of the Scientific Committee is to support and advise the Board of Directors on medical and other related issues, aiming at the scientific establishment and medical documentation of the positions and actions of the Association.