Against the background of the World Cystic Fibrosis Day, which is celebrated every year on 8 September, a visit of Prime Minister Kyriakos Mitsotakis to patients with Cystic Fibrosis took place on Wednesday 10 September.

The visit took place for the programme of home distribution of High Cost Medicines (HCM) in the presence of the Director of EOPYY, Ms Theanos Karpodini. The programme was piloted among Cystic Fibrosis patients a year ago and has now been extended to a wider population of beneficiaries, facilitating the daily lives of thousands of patients.

Cystic fibrosis patients spend about 3-4 hours a day and for the rest of their lives to complete all the necessary treatments. Home delivery of medicines has improved their daily lives, saving them valuable time from travelling and waiting in the EOPYY pharmacies, while protecting them from the risk of respiratory infections in crowded places.

The meeting was also attended by the President of the Panhellenic Cystic Fibrosis Association, Anna Spinou, who conveyed to the Prime Minister and the EOPYY management all the important issues concerning Cystic Fibrosis:

• The value of the home delivery programme, as it further facilitates the daily lives of patients.
• Timely access to medicines and innovative treatments, which are vital to saving the lives of Cystic Fibrosis patients.
• The need to strengthen lung transplants and organ donation to ensure a second chance at life.
• The need to strengthen specialist Cystic Fibrosis Centres, in order to provide the specialised care that patients need.
• The social benefits and rights that ensure that patients can live in dignity and participate equally in society.
• The need to inform young generations about the most common hereditary disease of Cystic Fibrosis through the Association’s new educational campaign entitled “Secret Mission: Cystic Fibrosis”.

The Panhellenic Cystic Fibrosis Association continues to intervene institutionally and to cooperate with the State and the competent bodies to meet the needs of patients. Part of our mission is to make the voice of Cystic Fibrosis patients heard loudly and to keep their needs at the heart of public health. Until the day when all Cystic Fibrosis patients, and every person, earn what they dream of: Unlimited Breath.