The Panhellenic Cystic Fibrosis Association invites patients with respiratory diseases and their caregivers to participate in the nationwide survey until 30 April.

The Panhellenic Cystic Fibrosis Association is conducting a nationwide survey to record the experiences and opinions of the community regarding lung transplantation in Greece. The survey is being implemented in the framework of the Lung Transplant Working Group and is addressed to:

• patients with respiratory diseases (transplanted and non-transplanted)
• people in the process of being evaluated or on the waiting list for a lung transplant
• patients who have concerns about transplantation
• carers and patient families
• people who have experienced the transplant pathway or patient loss

The aim is to capture the real-life experience of patients and carers at all stages from information and access to transplantation and post-transplant follow-up.

The results of the research will be used to formulate well-founded proposals to the State and the scientific community, aiming at the development of lung transplantation services in the country.

Participation is anonymous and takes 3-5 minutes.
Deadline: 30 April 2026

Complete the questionnaire here: https://docs.google.com/forms/d/e/1FAIpQLScHuWeGc4q1N7eCicUTp0Prg8lIlZ5iBtfFjVDhuRy6EuYdoQ/viewform

More about the research and the Lung Transplant Task Force: https://www.cysticfibrosis.gr/draseis/lung-transplant-working-group/